Jamie’s Experience of Navigating Crohn’s Disease as a Mom and Teacher

Jamie’s journey with Crohn’s disease began more than 16 years ago, when she was in her 20s and pursuing her dream of becoming an elementary school teacher. At first, she didn’t believe anything was seriously wrong. She had always been healthy, and the idea of having a chronic illness felt impossible. But as time went on, the signs became harder to ignore: rapid weight loss, extreme fatigue and severe abdominal pain that interfered with her ability to teach and function day to day.

Encouraged by those around her, Jamie eventually sought medical care and received her diagnosis. Like many patients, she initially felt overwhelmed and uncertain, especially learning that Crohn’s is a lifelong autoimmune condition with no cure. Her family, particularly her mother, a registered dietitian, played a key role in helping her adjust. Together, they began tracking her symptoms and identifying food triggers, which became a critical part of managing her condition.

In the early stages, eating itself was a challenge due to pain and fear of triggering symptoms. Over time, Jamie learned which foods worked for her and which didn’t, though that relationship with food remained complicated. Social situations, like family gatherings, brought added stress, as she often had to explain her choices or bring her own meals. Gradually, as she gained confidence and control, she was able to reintroduce more foods and regain weight.

Living with Crohn’s has evolved alongside Jamie’s life roles — as a wife, mother and teacher. Her daily routine now requires careful planning, from meal prepping to managing medications like regular infusions. Even small decisions, like eating on the go, can have consequences, sometimes leading to fatigue or urgent symptoms. Balancing her health with the demands of parenting and work can be challenging, and she often has to listen closely to her body to determine what it needs.

Despite these challenges, Jamie emphasizes the importance of self-advocacy, stress management and finding balance. She also highlights how isolating a diagnosis can feel, but stresses that support is available through communities like the Crohn’s & Colitis Foundation, where she is now a board member.

Jamie emphasizes that you should trust your body, seek medical care when something feels off and know you are not alone.