Fatty Liver, No Warning: Jerry’s Story of Survival and Advocacy

Credit: Adobe Stock/New Africa

Jerry Rosenberg never imagined that a vacation cruise would lead to a life-threatening health crisis — and ultimately, a new purpose. Without warning signs or a previous diagnosis, Jerry went into a coma caused by complications from undetected fatty liver disease. In this candid interview, he shares his extraordinary story of survival, the difficult path to recovery and how his experience transformed him into a passionate advocate for liver health and organ donation. This interview is part of a special three-part series in partnership with the Global Liver Institute (GLI), aimed at shedding light on the realities of fatty liver disease and elevating the voices of those affected.

Can you describe your life before your transplant?

Jerry Rosenberg: Before my transplant, my life was incredible. Socially, professionally and personally, I was thriving. My brother and I co-owned a nightclub, even though I hardly drank — maybe two or three sweet drinks a year. I was in great shape, around 188 pounds, and had just spent six weeks traveling across London, New York and Las Vegas. I walked miles every day. Life was busy, vibrant and full of travel and friends.

What happened that led to your transplant?

JR: It all changed when I boarded a cruise with my cousin. I had just received a clean bill of health from my doctor. But after eating buffet food that had been sitting out, I got food poisoning. The next day, I was told I had to disembark in Bermuda. That Friday, I called my brother to update him, but the next thing I remember was waking up in an air ambulance landing in Fort Lauderdale. I had gone into a coma. Doctors in Bermuda gave me zero chance of survival. The only hospital willing to accept me in the U.S. was the Cleveland Clinic in Florida. Eventually, Mayo Clinic accepted me into their program.

What was your recovery like?

JR: It was tough. After being in and out of comas, I lost the ability to walk. I had to be lifted from my hospital bed into a chair. I spent three weeks in rehab, then another 10 days in a nursing home before I was strong enough to walk with a walker. My brother, who was also my caregiver, pushed me hard. I eventually regained strength and have done well since, despite setbacks from medications that led to temporary liver rejection.

How did this experience lead you to patient advocacy?

JR: I dedicate my life now to educating people about liver disease and the importance of organ donation. I’m involved with the GLI, attend health fairs, speak to students and medical professionals, and advocate in Washington, D.C. It means everything to give back. People need to know that liver disease doesn’t always come with warning signs, and not all transplant patients were alcoholics.

What’s one thing you wish more people understood about liver disease and transplantation?

JR: The biggest misconception is that liver disease equals alcoholism. That stigma followed me even in the hospital. But I don’t drink. My liver disease was due to fatty liver, and I had no warning. Today, people are more aware, but there’s still education to be done.

Any final thoughts?

JR: Liver disease is a hard road, but it also leads to meaningful connections. I lost some friends, but gained new ones through support groups and the transplant community. We help each other. I’m not where I used to be physically, but I work hard every day. And I’m thankful every day to be here.

This transcript was edited for clarity.