Life’s New Normal: Monica Seles on Living With Myasthenia Gravis

Monica Seles, one of the greatest tennis champions of all time, is now channeling her competitive spirit into raising awareness for myasthenia gravis (MG) — a rare autoimmune, neuromuscular disease that causes muscle weakness. Her journey with MG began when she noticed unexplained weakness in her legs and arms, along with double vision. These symptoms eventually led to a diagnosis that required her to adapt to a “new normal” both on and off the court.

Adjusting to a New Normal

Myasthenia gravis can impact many aspects of daily life, from routine activities to professional responsibilities. For Seles, once effortless tasks like traveling or preparing for events now require extra planning. The condition also brings emotional challenges, as patients often experience feelings of isolation. Understanding and support from friends, family and colleagues can make a significant difference in managing these changes.

Finding Connection and Support

Seles has found community through MG-United, an online resource for people living with myasthenia gravis. The site offers practical tips on travel, cooking and symptom management, along with a supportive space for patients to connect. It also features the “Going for Greater” program, designed to help patients take proactive steps toward better day-to-day living.

The Importance of Self-Advocacy

One of Seles’ key messages is the importance of being an advocate for your own health. Recognizing unusual symptoms, seeking medical care and staying informed about treatment options are vital steps for anyone living with MG. She encourages patients to be attentive to their bodies and persistent in getting answers.

Using Her Platform to Raise Awareness

With the U.S. Open attracting a global audience, Seles is leveraging her connection to the sport to spotlight myasthenia gravis. She hopes that by sharing her story, more people will become familiar with the disease and its symptoms, leading to earlier diagnosis and better support for patients.

Her U.S. Open Watchlist

Although she’s no longer competing, Seles remains a passionate tennis fan. This year, she’s especially excited to watch players like Coco Gauff, Aryna Sabalenka and Iga Świątek — all of whom have shown exceptional form. She also has her eye on rising young talents such as Victoria Mboko and recent standout performers from the tour. For her, the U.S. Open is unique: the final Grand Slam of the season, a mentally intense competition and an event energized by an unmatched New York crowd.

A Message to the MG Community

Seles wants people living with myasthenia gravis to know they are not alone. By connecting with others, utilizing available resources and staying informed, patients can take control of their health and well-being. Her hope is that increased awareness will help ensure that MG becomes as widely recognized and understood as other chronic conditions.